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PUBLISHED COMMUNITY SERVICE

Elijah’s Hope CIC

A public listing from the Well Aware directory. Check the provider’s website for current availability and access arrangements.

Published service description

Elijah’s Hope is a Community Interest Company (CIC) aimed at bringing together families affected by the rare disease, Apert Syndrome. Approximately one in 65,000 babies is born with Apert Syndrome, which is a genetic disorder characterised by the premature fusion of certain skull bones. This early fusion prevents the skull from growing normally and affects the shape of the head and face. In addition, people with Apert Syndrome tend to experience syndactyly, where a number of fingers and toes are fused together.

Adapted from the publisher’s listing; statements about the service are supplied by that source.

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Source and reuse

Well Aware, published through Bristol’s Open Referral directory. Record identifier: 4489a5bd-c290-6f09-807f-088f204a5dd1. Open Government Licence terms.

Source assurance is a date recorded by the directory; it is not an inspection or a check carried out by Compare Local Care.

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