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NCT05789758

A Study to Learn How Nusinersen (Spinraza) Affects Participants With Spinal Muscular Atrophy (SMA) Who Took it Before or During Pregnancy And About The Health of Their Babies

Registered research study with 10 identifiable England locations. See source dates, location-specific recruitment and the original study record.

Study facts

Conditions recorded
Muscular Atrophy, Spinal
Lead sponsor
Biogen
Study type
Observational
Overall status
Recruiting · this can differ by location
Age range in the record
18 Years to 54 Years
Sex eligibility field
Female
Healthy volunteers accepted
No, according to the record
Phase
Not applicable or not reported
Study record last updated
9 March 2026
Study team last verified status
2026-03

These fields are a starting point. Eligibility can include diagnosis, treatment history and other criteria shown only in the complete source record. A registry entry does not establish treatment effectiveness.

England study locations

A location is reproduced as named in the study record. A source map point can represent a town; it is not used here as a hospital entrance or to identify a care provider.

Location in the sourceLocal recruitment statusGeographic connection
University College London Hospitals NHS Foundation Trust

London · NW1 2PG

RecruitingCare in Camden

England postcode

St George's University NHS Foundation Trust

London · SW17 0QT

RecruitingCare in Wandsworth

England postcode

The Northern Care Alliance NHS Foundation Trust

Salford · M6 8HD

RecruitingCare in Salford

England postcode

University Hospital Southampton NHS Foundation Trust

Southampton · SO16 6YD

RecruitingCare in Southampton

England postcode

Nottingham University Hospitals Trust

Nottingham · NG5 1PB

RecruitingCare in Nottingham

England postcode

The Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust

Oswestry · SY10 7AG

RecruitingCare in Shropshire

England postcode

Sheffield Teaching Hospitals NHS Foundation Trust

Sheffield · S10 2SB

RecruitingCare in Sheffield

England postcode

The Newcastle upon Tyne Hospitals NHS Foundation Trust

Newcastle upon Tyne · NE7 7ND

RecruitingCare in Newcastle upon Tyne

England postcode

University Hospitals Birmingham NHS Foundation Trust

Birmingham · B15 2GW

RecruitingCare in Birmingham

England postcode

North Bristol NHS Trust

Bristol · BS10 5NB

RecruitingCare in Bristol

England postcode

Questions for the research team

  • Is this exact location currently enrolling participants, and do my circumstances meet the full criteria?
  • What visits, tests, possible risks and follow-up would participation involve?
  • Are travel costs or accessibility arrangements available?
  • How would participation affect my usual care, and what happens if I withdraw?

Source: ClinicalTrials.gov, a United States Government database. Contains OS data © Crown copyright and database right 2026. Contains National Statistics data © Crown copyright and database right 2024; ONS country boundaries (December 2024).

Source processed: 2026-09-10 09:00:04 UTC. Retrieved: 10 September 2026. ClinicalTrials.gov terms.

How we selected and connected these records

Selected registered studies with an overall status of Recruiting or Not yet recruiting and at least one England location established by postcode, recorded nation, or source coordinates within the ONS December 2024 boundary. Retained structured fields; omitted descriptions, eligibility text, contacts and non-England locations. Deduplicated identical locations. Linked local care areas only by exact postcode geography. Location points are used for nation filtering, not directions or facility matching.