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NCT03193476

Registry for Patients With X-Linked Hypophosphatemia

Registered research study with 15 identifiable England locations. See source dates, location-specific recruitment and the original study record.

Study facts

Conditions recorded
X-Linked Hypophosphatemia
Lead sponsor
Kyowa Kirin Pharmaceutical Development Ltd
Study type
Observational
Overall status
Recruiting · this can differ by location
Age range in the record
Not specified to Not specified
Sex eligibility field
All
Healthy volunteers accepted
No, according to the record
Phase
Not applicable or not reported
Study record last updated
9 July 2026
Study team last verified status
2026-07

These fields are a starting point. Eligibility can include diagnosis, treatment history and other criteria shown only in the complete source record. A registry entry does not establish treatment effectiveness.

England study locations

A location is reproduced as named in the study record. A source map point can represent a town; it is not used here as a hospital entrance or to identify a care provider.

Location in the sourceLocal recruitment statusGeographic connection
Birmingham Children's Hospital

Birmingham · B4 6NH

Active not recruitingCare in Birmingham

England postcode

University Hospitals Bristol and Weston

Bristol · BS2 8AE

Active not recruitingCare in Bristol

England postcode

Addenbrooke's Hospital

Cambridge · CB2 2QQ

Active not recruitingEngland location

Source location point within ONS England boundary

Leeds General Infirmary

Leeds · LS1 3EX

Active not recruitingCare in Leeds

England postcode

Alder Hey Children's Hospital

Liverpool · L12 2AP

Active not recruitingCare in Liverpool

England postcode

Royal Liverpool University Hospital

Liverpool · L7 8XP

Active not recruitingCare in Liverpool

England postcode

National Hospital for Neurology and Neurosurgery

London · NW1 2PG

Active not recruitingCare in Camden

England postcode

Evelina Childrens Hospital

London · SE1 7EH

Active not recruitingCare in Lambeth

England postcode

Great Ormond Street Hospital for Children

London · WC1N 3JH

Active not recruitingCare in Camden

England postcode

Royal Manchester Children's Hospital

Manchester · M13 9WL

Active not recruitingCare in Manchester

England postcode

Oxford University Hospital NHS Trust

Oxford · OX3 7LD

Active not recruitingCare in Oxford

England postcode

Sheffield Childrens Hospital

Sheffield · S10 2RX

Active not recruitingCare in Sheffield

England postcode

Sheffield Teaching Hospitals

Sheffield · S5 7AU

Active not recruitingCare in Sheffield

England postcode

Southampton General Hospital

Southampton · SO16 6YD

Active not recruitingCare in Southampton

England postcode

Stanmore Royal Orthopaedic Hospital

Stanmore · HA7 4LP

Active not recruitingCare in Harrow

England postcode

Questions for the research team

  • Is this exact location currently enrolling participants, and do my circumstances meet the full criteria?
  • What visits, tests, possible risks and follow-up would participation involve?
  • Are travel costs or accessibility arrangements available?
  • How would participation affect my usual care, and what happens if I withdraw?

Source: ClinicalTrials.gov, a United States Government database. Contains OS data © Crown copyright and database right 2026. Contains National Statistics data © Crown copyright and database right 2024; ONS country boundaries (December 2024).

Source processed: 2026-09-10 09:00:04 UTC. Retrieved: 10 September 2026. ClinicalTrials.gov terms.

How we selected and connected these records

Selected registered studies with an overall status of Recruiting or Not yet recruiting and at least one England location established by postcode, recorded nation, or source coordinates within the ONS December 2024 boundary. Retained structured fields; omitted descriptions, eligibility text, contacts and non-England locations. Deduplicated identical locations. Linked local care areas only by exact postcode geography. Location points are used for nation filtering, not directions or facility matching.