NCT00231400
Pompe Disease Registry Protocol
Registered research study with 9 identifiable England locations. See source dates, location-specific recruitment and the original study record.
Study facts
- Conditions recorded
- Glycogen Storage Disease Type II; Pompe Disease
- Lead sponsor
- Genzyme, a Sanofi Company
- Study type
- Observational
- Overall status
- Recruiting · this can differ by location
- Age range in the record
- Not specified to Not specified
- Sex eligibility field
- All
- Healthy volunteers accepted
- No, according to the record
- Phase
- Not applicable or not reported
- Study record last updated
- 23 June 2026
- Study team last verified status
- 2026-06
These fields are a starting point. Eligibility can include diagnosis, treatment history and other criteria shown only in the complete source record. A registry entry does not establish treatment effectiveness.
England study locations
A location is reproduced as named in the study record. A source map point can represent a town; it is not used here as a hospital entrance or to identify a care provider.
| Location in the source | Local recruitment status | Geographic connection |
|---|---|---|
| Investigational Site Number : 151340 Cambridge · CB2 2QQ | Recruiting | England location Source location point within ONS England boundary |
| Investigational Site Number : 152287 Birmingham · B15 2TH | Recruiting | Care in Birmingham England postcode |
| Investigational Site Number : 154240 Birmingham · B4 6NH | Recruiting | Care in Birmingham England postcode |
| Investigational Site Number : 151123 London · NW3 2QG | Recruiting | Care in Camden England postcode |
| Investigational Site Number : 151646 London · WC1N 3BG | Recruiting | Care in Camden England postcode |
| Investigational Site Number : 150303 London · WC1N 3JH | Recruiting | Care in Camden England postcode |
| Investigational Site Number : 150964 Salford · M6 8HD | Recruiting | Care in Salford England postcode |
| Investigational Site Number : 150455 Manchester · M86rb | Recruiting | England location Source location point within ONS England boundary |
| Investigational Site Number : 152087 Newcastle upon Tyne · NE1 7XE | Recruiting | Care in Newcastle upon Tyne England postcode |
Questions for the research team
- Is this exact location currently enrolling participants, and do my circumstances meet the full criteria?
- What visits, tests, possible risks and follow-up would participation involve?
- Are travel costs or accessibility arrangements available?
- How would participation affect my usual care, and what happens if I withdraw?
Source: ClinicalTrials.gov, a United States Government database. Contains OS data © Crown copyright and database right 2026. Contains National Statistics data © Crown copyright and database right 2024; ONS country boundaries (December 2024).
Source processed: 2026-09-10 09:00:04 UTC. Retrieved: 10 September 2026. ClinicalTrials.gov terms.
How we selected and connected these records
Selected registered studies with an overall status of Recruiting or Not yet recruiting and at least one England location established by postcode, recorded nation, or source coordinates within the ONS December 2024 boundary. Retained structured fields; omitted descriptions, eligibility text, contacts and non-England locations. Deduplicated identical locations. Linked local care areas only by exact postcode geography. Location points are used for nation filtering, not directions or facility matching.